Featured Events

2012 BDSRA Conference

Recent Bulletins

January 2012
Updated: 2012-01-09 20:53:11
October 2011
Updated: 2011-10-09 19:41:38
July 2011
Updated: 2011-10-09 19:37:39

Help Fund Research


The Illuminator

Quarterly newsletter that contains the latest on research, features children from around the world with Batten Disease, general information applicable to families, as well as fundraising information and events.

January 2012


October 2011


July 2011


April 2011


October 2010


April 2010


January 2010


October 2009


July 2009


April 2009


January 2009


October 2008


July 2008


April 2008


January 2008


April 2003


October 2000

July 2000

The Lighthouse

The Lighthouse is a publication by the BDSRA to assist those that have lost loved ones, especially by the devastation of Batten Disease. It strives to inspire, provide comfort, and give guidance.
Summer - Fall 2009


Fall 2008


Winter 2008


Autumn 2007


Winter 2005


Spring 2004


Winter 2004


Autumn 2003


Summer 2003


Winter 2003


Summer 2002


Winter 2002


Autumn 2001


Summer 2001