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2012 BDSRA Conference

Recent Bulletins

January 2012
Updated: 2012-01-09 20:53:11
October 2011
Updated: 2011-10-09 19:41:38
July 2011
Updated: 2011-10-09 19:37:39

Help Fund Research


Monthly News Flash from BDSRA

Please click on each Question Title to read more information

November 2010 NewsFlash

Last Updated 2010-11-17 at 10:12:59
  • ANNUAL FUND CAMPAIGN
  • COMPLETING THE ENTIRE PUZZLE
  • AN "INTERNATIONAL PROJECT OF HOPE" SUMMARY
  • KIDS HELPING KIDS


September 2010 NewsFlash

Last Updated 2010-09-20 at 07:23:34
  • New Program Director
  • Batten Candles
  • Family Spotlight
  • Dog Genes offer clues to Batten


June 2010 News Flash

Last Updated 2010-06-16 at 13:11:28
  • Board Election Results
  • Upcoming Conference
  • Batten Awareness Weekend
  • Barkin' For Batten
  • Drug Trial Update
  • and Much More


May 2010 Newsflash

Last Updated 2010-05-14 at 11:03:38


February 2010 News Flash

Last Updated 2010-02-18 at 12:45:26
Please read the latest News Flash for information from BDSRA

  • Rare Disease Day 2010
  • BDSRA Funds Remaining Half of Research Proposals and One New Proposal
  • Social Security Adds 38 New Compassionate Allowance Conditions
  • Australia Chapter National Awareness Day

    • December 2009 News Flash

    Last Updated 2009-12-16 at 12:17:56
    Please read the latest News Flash for information from BDSRA

  • BDSRA Approves Juvenile Drug Trial Funding
  • December 31st Deadline for 2009 Charitable Contributions
  • Stem Cells Inc. Provides Update on NCL Program Meeting with FDA
  • Garrett's Wings and Hayden's Hope Challenge Grant


    • November 2009 News Flash

    Last Updated 2009-11-24 at 14:14:31
    Please read the latest News Flash for information from BDSRA.

    • NIH Announces Expansion of Rare Diseases Clinical Research Network
    • Goodsearch & Goodshop
    • UI Scientists use blood brain barrier as therapy delivery system
    • BDSRA Attends Child Neurology Society Conference


    September 2009 News Flash

    Last Updated 2009-11-04 at 10:24:02
    Please read the latest News Flash for updates from BDSRA.

    • Teach & Be Taught DVD: Volume 3 – Educating Students with Infantile or Late Infantile Batten Disease
    • StemCells, Inc. Demonstrates Protection Of Neurological Function In Batten Mouse
    • Tracey Wilson, Director of Development, Resigns from BDSRA
    • New Dementia book now available
    • Upcoming Events


    August 2009 News Flash

    Last Updated 2009-11-04 at 10:23:53
    Please read the latest News Flash for updates from BDSRA.

    • 2009 BDSRA Conference Recap
    • Looking Ahead…..
    • Family Fundraising News
    • Upcoming Events


    June 2009 News Flash

    Last Updated 2009-11-04 at 10:23:42
    Take a look at the June 2009 News Flash for up-to-date news of what is happening in BDSRA.

    • International NCL Congress—Hamburg, Germany
    • Batten Disease Awareness Days
    • Director of Development Joins BDSRA
    • Illinois and Missouri State Government Recognize Batten Disease Awareness Days


    May 2009 News Flash

    Last Updated 2009-11-04 at 10:22:59
    • BDSRA 2009 Conference—St. Louis, MO
    • Kim Zellmer to Join NINDS Advisory Council
    • Director of Development Joins BDSRA
    • Blake’s Purpose Foundation Gives Research Awards
    • Board Member Voting Ballots Arriving Soon


    February 2009 News Flash

    Last Updated 2009-11-04 at 10:22:36
    • BDSRA 2009 Conference—St. Louis, MO
    • Nick Wellner Meets NFL Superstar
    • Taylor Participates in 5K Jingle Jog
    • Jacob Scores the Winning Goal
    • Family Fundraising News