The BDSRA Staff

Adina Ryan Director of Development View Profile

Lisa Weston Programs Director View Profile

Nancy Carney Family Medical Liaison/Educator View Profile

Lance Johnston Executive Director View Profile

Donna Gunn Office Manager View Profile

A Letter From Adina Ryan

Happy New Year!

I hope everyone had a wonderful holiday season and was able to enjoy treasured time with family and friends. Now we turn our thoughts to a brand new year with hopes for exciting progress in Batten disease research and in our support of all of you with BDSRA's programs and services.

I also want to share my news that I received an opportunity to work closer to home where I can share more of my time with my family and community, and have recently resigned as Director of Development for BDSRA. I am so grateful to have had the chance to meet so many of you and to play a small part in sharing your lives. Thank you for all your kindness to me these last two years. You will all be forever embedded in my heart. Your cause is still my cause, and I hope that the next generation of leaders for BDSRA will be able to do even more to help eradicate this disease. I am just a Facebook page away and certainly hope that I can stay a part of your family. Best wishes to all of you for a very wonderful 2012.

With utmost respect and admiration,

Adina Ryan